Posts Tagged With: CCTGA

Day 3172: National Grateful Patient Day

Since the day I was born in 1953 with a very rare heart condition, I have been a grateful patient. And today — as well as being the first day of Rosh Hashana — is National Grateful Patient Day.

This morning, I am a little less grateful and patient than usual to be a patient, because my nose bleed — caused by the unfortunate combination of our new kitty Joan scratching inside my nose and my being on anticoagulants because of my mechanical heart valve — has not completely resolved.

However, if I focus on being patient and grateful, I know that I have wonderful people on my medical team who will help solve this problem, just as they have solved so many issues with me before.

I am especially grateful and patient, every day, because it’s so unlikely that I would have survived — with such overall good health — as long as I have with my very unusual heart.

And really, what’s so terrible about a little nosebleed? I have been a grateful patient through so many surgeries, set-backs, scares, disappointments, surprises, dangers, close-calls, and physical and emotional traumas over the years, and look! I’m still here to blog about it today.

So let’s try our best, during these challenging times, to gratefully and patiently celebrate another precious day. Here are the other images this grateful patient has to share with you on September 7, 2021.

The Daily Bitch is right about this: with my heart condition and my tendency to catastrophize, the way I do things may not always be the easy way. However, the way I’ve done things has helped keep me alive and resilient, even if I’m not always the most patient of patients.

Here’s something I find when I search YouTube for “National Grateful Patient Day.”

If you’re patient enough, you’ll always find gratitude at the end of my blog posts!

Categories: heart condition, life during the pandemic, personal growth, photojournalism | Tags: , , , , , , , , | 7 Comments

Day 2922: Personal Bests and Worsts of 2020

On the last day of each year, I put together my personal best and worst lists. In every other year, these have been Top 10 lists. For 2020, both my lists go to 11.

My son Aaron, my husband Michael, my Coping and Healing on-line therapy groups, blogging, my friends, the movie La Fée, surviving COVID, the Biden/Harris victory, walks by the ocean, and cats are on my 2020 best list.

Many deaths are on my 2020 worst list, including the COVID-caused death of a beloved patient, the death of my dear friend Eleanor, the death of my “heart brother” David (a wonderful man who had the same rare heart condition as me), and the death of our amazing kitty Oscar. Powerful and destructive narcissists (who shall remain nameless) are on my worst list, too.

Do you see any evidence of the Best and Worst of 2020 in today’s images?

2020 might be my best New Year’s Eve ever because tonight I’m facilitating a special NYE’s version of my Coping and Healing group!

Here’s my most-listened-to tune for 2020 (no matter what Spotify says!).

If you share some personal 2020 bests and/or worsts in the comments section below, that would be the best.

A happier 2021 and I personally thank you for making it through 2020!

Categories: heart condition, life during the pandemic, personal growth, photojournalism | Tags: , , , , , , , , , | 28 Comments

Day 2375: Who you are, who you aren’t.

Who I am is a group therapist and “who you are, who you aren’t” came up in a therapy group yesterday.

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Who I am is somebody who likes clarity, so “who you are, who you aren’t” is on the second-to-bottom line in that group-generated topic list, above.

Who I am NOT is somebody with great handwriting.

Who I am is also a human being who …

  •  wears socks with information about who I am,

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  •  appreciates the kindness in others,

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  •  notices sensitivity, acceptance, and emotions,

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  •  tries to take a breath when feeling attacked,

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  • thinks there are three great questions to ask oneself before responding to others,

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  • usually validates others before moving on to next steps,

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  • loves living near the ocean,

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  • appreciates great home cooking,

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  • has an unusual heart,

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  • and shares, on this blog and elsewhere, information about living with a very unusual heart.

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Who I am NOT is somebody who has been interviewed for a podcast before, but I will be that person after tonight.

Here‘s the Who with “Who Are You.”

If who you are is somebody who comments on blogs, please share any thoughts and feelings about “who you are, who you aren’t” below.

Who I am is a person who feels and expresses gratitude for those who help me create these daily posts and — of course! — for YOU (no matter who you are or aren’t).

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Categories: personal growth, photojournalism | Tags: , , , , , , , , , , | 16 Comments

Day 2348: 2 c or not 2 c

Yesterday, I chose to see this at a hospital parking lot …

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… and it occurred to me that we choose what to see and what not to see.

For example, because my eye was red yesterday …

 

… I chose 2  C  several eye-related things.

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Because I have an unusual heart, I often choose 2 C heart-related things.

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Because it’s Pride Week, I chose 2 C this:

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Because I want to avoid collisions, I chose 2 C these:

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Here are more things I chose 2 C yesterday:

 

Were U able 2 C that these socks …

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… are Ouija Board socks?  I choose 2 C that those socks are 4 people who want 2 C into the future.

I choose 2 C that Prince‘s song “I Would Die 4 U” is on YouTube, at least 4 now:

I also choose 2 C that Prince’s birthday is tomorrow, June 7.   I also choose 2 C that tomorrow is the start of the Northeastern Society for Group Psychotherapy’s annual conference in Boston.

What do you choose 2 C and not 2 C in today’s blog post?

I always choose 2 C gratitude, so thanks 2 all who helped me 2 create this “2 C or not 2 C” post and — of course! — 2 U!

 

 

Categories: group therapy, personal growth, photojournalism | Tags: , , , , , , , , , | 18 Comments

Day 2291: Why? Why?

Why oh why am I writing a fourth blog post about Why?  Why am I linking to the previous three posts (here, here, and here)?

Why did I write “Why?” on two different white boards at work yesterday?

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Why do white boards consistently get more difficult to erase?

Why were people in therapy yesterday asking so many WHY? questions, including:

Why is there so much traffic?

Why did it take me four times as long as usual to get here today?

Why do people back their cars into spaces in parking lots?

Why do people do what they do?

Why do I deliberately act like a mischievous child?

Why am I in so much pain?

Why am I in therapy?

Why aren’t other people in therapy?

Why did I take the rest of these pictures?

 

Why is it taking so much longer for me to access and transfer my photos? Why does that happen periodically?  Why does it bother me less each time it happens?

Why am I still having trouble writing that letter from the President for my professional organization’s newsletter?  Why did I start fresh yesterday with a new topic?  Why did Michael say he thought my first, abandoned topic  (the rejuvenation of Spring) was better? Why am I going to finish the second topic and then write another letter with the first topic if I have time? Why am I using the quote “If you want something to get done, give it to the busiest person” in my letter?

Why did I ask all the questions I did in this podcast (starting at 19 minutes and again at 28:34)?

 

Why did Michael not want to listen to that podcast last night? Probably for the same reason he doesn’t usually read this blog.   Why did I think I could find the post that explains that by searching on “Why Michael doesn’t read this blog”?

Why would you leave a comment today?

Why would I thank all those who help me write these posts and also YOU?  Why do you think?

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Categories: health care, heart condition, personal growth, photojournalism, Psychotherapy | Tags: , , , , , , , , , | 18 Comments

Day 2220: Heartbreak to Happiness

Yesterday, I went from heartbreak (about my wonderful, trusted, and long-time cardiologist Dr. Mark Estes leaving Boston) to happiness about the kindness, caring, commitment, and competency of my new cardiologist, Dr. Munther Homoud.

While I was waiting to see Dr. Homoud for the first time, I noticed all this:

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I’ve gone from heartbreak to happiness about my unusual congenital heart disorder many, many times during my almost sixty-six years on this planet.   At this point, after a miraculous and happy time when my heart reverted to a normal rhythm after my valve replacement surgery in 2016, my heart is back in atrial fibrillation for the rest of my life.  I have no heartbreak about that, only happiness because of my caring and committed team of cardiologists.

Do you see any paths from heartbreak to happiness in my other photos from yesterday?

 

 

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My boyfriend Michael (who makes my heart happy  with his nutritious, delicious, low-salt home-cooked meals) helps me go from heartbreak to happiness, every day.  Last night, after a  typical heartbreak-to-happiness-to-heartbreak-to-happiness day, we danced to this:

What helps you go from heartbreak to happiness? For me, gratitude always helps.

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Categories: personal growth | Tags: , , , , , , , , , , | 25 Comments

Day 2059: HEART TO HEART

Where does your HEART go, dear HEART, when you HEAR The words “HEART TO HEART”?

My HEART goes to important conversations with those I love, including these two Scottish women with whom I share a very unusual HEART condition.

Whenever I’m in Edinburgh, I have a HEART TO HEART TO HEART with Vicki and Andrena. We all have congenitally corrected transposition of the great arteries (cctga), the rarest of congenital HEART conditions and we have a lot to say to each other. The odds of the three of us being in the same place at the same time are so astronomical, I don’t have the HEART to calculate it.

Do you see any other HEART TO HEART’s in my other HEARTfelt photos from yesterday?

I look forward to HEART TO HEART’s in the comment section, below.

Thanks — from my HEART — to my HEART sisters Vicki and Andrena, Vicki’s wonderful rescue dog Belle, Loudons Cafe, the Edinburgh Festival Fringe, those who celebrate difference, all who battle suicide, Gillian Skye (the excellent writer and actor of Come Die With Us, which touched my HEART), Tony Slattery, all those who forgive and learn from mistakes, and — of course! — YOU, my dear heart of a reader.

Categories: heart condition, personal growth, photojournalism | Tags: , , , , , , , | 24 Comments

Day 1818: Children

Almost exactly three years ago, I published another post titled “Children.”    ‘Tis the season, I suppose, for visions of children to dance in my head.

Also, I saw this yesterday:

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Are visions of children dancing in my other photos from yesterday?

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That’s my only child, Aaron. When I was a child, I was told it was not advisable for me to have children because of my very unusual heart.   I doubt that outdated advice is in this book …

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….which my child and I saw yesterday at a local library.

Children are good for a happy, healthy heart. So is music like this:

Thanks to all the children and adults who helped me create today’s post and — of course! — to YOU.

Categories: personal growth, photojournalism | Tags: , , , , , , , | 31 Comments

Day 1809: Caregivers

Today’s title is inspired by this photo

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and by all who give care, including my co-worker Janice.

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Janice, a caring nurse who gives great care, loves purple, and she took care to show me her purple Christmas tree yesterday.

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Here are other items Janice has carefully placed where she gives care to patients.

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Janice, who obviously cares, always autographs her work with excellence.

Later in the day, I saw my excellent care-giving Primary Care Physician, Dr. Laura Snydman. She cared enough to tell me that the excellent care my very unusual heart has been given by caregivers from Boston to Minneapolis has paid off. With good care, my caregiving heart should last many more years.

Do you see any caregivers or caregiving in my other photos from yesterday?

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I now care to give you this funny cat video that might lower anxiety as much as (or even more than) exercise:

As always, I give caring thanks to all who helped me create this post and — of course! — to you, for the care you give.

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Categories: personal growth | Tags: , , , , , , , , | 19 Comments

Day 1732: Got a second?

Got a second? I’d like to tell you about yesterday’s appointment with my cardiologist, Dr. Salem (who is second to none).  While I was waiting several seconds in the exam room for Dr. Salem, I took a second to snap this:


Got a second to hear about my conversation with Dr. Salem?  Dr. Salem said he couldn’t be more pleased about how my heart is beating every second, as I begin my second year after my heart valve replacement surgery last September.   I seconded that opinion.

Got a second to look at some more split-second photos?

Got a second to listen to “A Good Thing Going” from Merrily We Roll Along, which I’ll be seeing for a second time this weekend?

If you’ve got a second, keep a good thing going by leaving a comment below.

I’ve always got a second to thank all who help me create these posts. Second, I want to thank YOU for being so supportive, every second.

Categories: heart condition, personal growth, photojournalism | Tags: , , , , , , , , , | 16 Comments

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