Posts Tagged With: CCTGA

Day 3550: Two wrongs don’t make a right

“Two wrongs don’t make a right” was one of my late mother’s favorite sayings. Another favorite saying of my mother’s was “there’s a place for everything and everything in its place” so I think this is the place for today’s Daily Bitch Calendar.

It sure as hell would make me feel better right now to share a photo of my mother. It’s right that I coincidentally captured an image of my mother with my son Aaron yesterday when I took a picture of our cat, Joan (on the right).

Two humans — my husband Michael and I — were wrong in worrying that our old and fretful shelter cat Harley would never accept shelter cat Joan. Those two together definitely make a right.

There’s a place for everything and this is the place I’ll share a story about my mother and me and “two wrongs don’t make a right.” I was born with a heart that was wrong, which resulted in many hospitalizations and my needing pacemakers from a very young age. We didn’t know what kind of heart condition I had until my very right and still current cardiologist, Dr. Deeb Salem, figured out in the 1980’s that I had the very rare heart condition of congenitally corrected transposition of the great arteries (CCTGA). When Dr. Salem rightly described how my heart was very wrong in two different ways — (1) the aorta and the pulmonary arteries are switched and (2) the ventricles are also switched — and

  1. that means all the blood ends up in the right place and
  2. having just one of those wrongs would have killed me when I was born in 1953 because of what kinds of heart surgeries were available then,

I turned to my mother and said “You know how you always say ‘two wrongs don’t make a right?’ I guess not!”

There’s a place for everything and this is the place for me to say that I miss my mother and my father every day.

It’s right that many of my images for today have twos in them.

It seems wrong to me that onion rings and kissing — both very right in their own way — are celebrated on the same day.

Here’s what I find on YouTube when I search for “two wrongs don’t make a right.”

I also find this very right rendition of “Two Wrongs” by Wyclef Jean with Claudette Ortiz:

It’s right for me to end each post with thanks to all who help me blog every day, including YOU!

Categories: heart condition, personal growth, photojournalism | Tags: , , , , , , , , , | 11 Comments

Day 3386: Important messages

In all of my careers — including marketing communications and psychotherapy — I’ve thought a lot about communcating important messages.

In order to effectively deliver important messages, you need to

  • know your audience and
  • choose clear, strong, passionate, and honest ideas to reach your audience and inspire them to action.

I believe that many important messages are getting lost in all the noise out there and I fear we are running out of time to communicate them effectively.

Do you see important messages in any of my images for today?

Important messages I received from being born with a very unusual heart is that life is short and every day counts.

Here’s what I find on YouTube when I search for “important messages.”

I look forward to the important messages that will appear in the comments section, below.

Gratitude is an important message I deliver at the end of every post, so thanks to all who help me deliver the daily messages in this blog, including YOU!

Categories: personal growth, photojournalism, politics | Tags: , , , , , , , , , | 12 Comments

Day 3320: Groundhog Day 2022

On 2/2/22, I have 22K followers on Twitter and I’m celebrating my 22 + 47th birthday!

My plan for Groundhog Day 2022 is to take the day off from work; spend it with my husband, my son, and our two cats; play our annual game of Sorry; eat flourless chocolate cake with whipped cream; read; take a walk; listen to music; and practice this song on the ukulele:

Two days after Groundhog Day, I’ll be performing that song at a remote Open Mic.

I was able to catch, live, the Groundhog’s prediction for 2022:

Of course, commercials almost ruin that, but the prediction is there (and no surprise).

Can you see evidence of Groundhog Day in my other images for today?

Because of the rare heart condition I was born with, I’ve never been a girl or woman in sports. However, if you can’t play a sport, be a sport, which I guess I am.

How are you going to celebrate Groundhog Day 2022?

I’m going to express my gratitude to all those who have been there for me during Groundhog Day(s), including YOU!

Categories: celebrating, heart condition, personal growth, photojournalism | Tags: , , , , , , , , | 24 Comments

Day 3172: National Grateful Patient Day

Since the day I was born in 1953 with a very rare heart condition, I have been a grateful patient. And today — as well as being the first day of Rosh Hashana — is National Grateful Patient Day.

This morning, I am a little less grateful and patient than usual to be a patient, because my nose bleed — caused by the unfortunate combination of our new kitty Joan scratching inside my nose and my being on anticoagulants because of my mechanical heart valve — has not completely resolved.

However, if I focus on being patient and grateful, I know that I have wonderful people on my medical team who will help solve this problem, just as they have solved so many issues with me before.

I am especially grateful and patient, every day, because it’s so unlikely that I would have survived — with such overall good health — as long as I have with my very unusual heart.

And really, what’s so terrible about a little nosebleed? I have been a grateful patient through so many surgeries, set-backs, scares, disappointments, surprises, dangers, close-calls, and physical and emotional traumas over the years, and look! I’m still here to blog about it today.

So let’s try our best, during these challenging times, to gratefully and patiently celebrate another precious day. Here are the other images this grateful patient has to share with you on September 7, 2021.

The Daily Bitch is right about this: with my heart condition and my tendency to catastrophize, the way I do things may not always be the easy way. However, the way I’ve done things has helped keep me alive and resilient, even if I’m not always the most patient of patients.

Here’s something I find when I search YouTube for “National Grateful Patient Day.”

If you’re patient enough, you’ll always find gratitude at the end of my blog posts!

Categories: heart condition, life during the pandemic, personal growth, photojournalism | Tags: , , , , , , , , | 7 Comments

Day 2922: Personal Bests and Worsts of 2020

On the last day of each year, I put together my personal best and worst lists. In every other year, these have been Top 10 lists. For 2020, both my lists go to 11.

My son Aaron, my husband Michael, my Coping and Healing on-line therapy groups, blogging, my friends, the movie La Fée, surviving COVID, the Biden/Harris victory, walks by the ocean, and cats are on my 2020 best list.

Many deaths are on my 2020 worst list, including the COVID-caused death of a beloved patient, the death of my dear friend Eleanor, the death of my “heart brother” David (a wonderful man who had the same rare heart condition as me), and the death of our amazing kitty Oscar. Powerful and destructive narcissists (who shall remain nameless) are on my worst list, too.

Do you see any evidence of the Best and Worst of 2020 in today’s images?

2020 might be my best New Year’s Eve ever because tonight I’m facilitating a special NYE’s version of my Coping and Healing group!

Here’s my most-listened-to tune for 2020 (no matter what Spotify says!).

If you share some personal 2020 bests and/or worsts in the comments section below, that would be the best.

A happier 2021 and I personally thank you for making it through 2020!

Categories: heart condition, life during the pandemic, personal growth, photojournalism | Tags: , , , , , , , , , | 28 Comments

Day 2375: Who you are, who you aren’t.

Who I am is a group therapist and “who you are, who you aren’t” came up in a therapy group yesterday.

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Who I am is somebody who likes clarity, so “who you are, who you aren’t” is on the second-to-bottom line in that group-generated topic list, above.

Who I am NOT is somebody with great handwriting.

Who I am is also a human being who …

  •  wears socks with information about who I am,

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  •  appreciates the kindness in others,

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  •  notices sensitivity, acceptance, and emotions,

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  •  tries to take a breath when feeling attacked,

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  • thinks there are three great questions to ask oneself before responding to others,

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  • usually validates others before moving on to next steps,

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  • loves living near the ocean,

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  • appreciates great home cooking,

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  • has an unusual heart,

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  • and shares, on this blog and elsewhere, information about living with a very unusual heart.

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Who I am NOT is somebody who has been interviewed for a podcast before, but I will be that person after tonight.

Here‘s the Who with “Who Are You.”

If who you are is somebody who comments on blogs, please share any thoughts and feelings about “who you are, who you aren’t” below.

Who I am is a person who feels and expresses gratitude for those who help me create these daily posts and — of course! — for YOU (no matter who you are or aren’t).

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Categories: personal growth, photojournalism | Tags: , , , , , , , , , , | 16 Comments

Day 2348: 2 c or not 2 c

Yesterday, I chose to see this at a hospital parking lot …

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… and it occurred to me that we choose what to see and what not to see.

For example, because my eye was red yesterday …

 

… I chose 2  C  several eye-related things.

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Because I have an unusual heart, I often choose 2 C heart-related things.

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Because it’s Pride Week, I chose 2 C this:

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Because I want to avoid collisions, I chose 2 C these:

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Here are more things I chose 2 C yesterday:

 

Were U able 2 C that these socks …

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… are Ouija Board socks?  I choose 2 C that those socks are 4 people who want 2 C into the future.

I choose 2 C that Prince‘s song “I Would Die 4 U” is on YouTube, at least 4 now:

I also choose 2 C that Prince’s birthday is tomorrow, June 7.   I also choose 2 C that tomorrow is the start of the Northeastern Society for Group Psychotherapy’s annual conference in Boston.

What do you choose 2 C and not 2 C in today’s blog post?

I always choose 2 C gratitude, so thanks 2 all who helped me 2 create this “2 C or not 2 C” post and — of course! — 2 U!

 

 

Categories: group therapy, personal growth, photojournalism | Tags: , , , , , , , , , | 18 Comments

Day 2291: Why? Why?

Why oh why am I writing a fourth blog post about Why?  Why am I linking to the previous three posts (here, here, and here)?

Why did I write “Why?” on two different white boards at work yesterday?

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Why do white boards consistently get more difficult to erase?

Why were people in therapy yesterday asking so many WHY? questions, including:

Why is there so much traffic?

Why did it take me four times as long as usual to get here today?

Why do people back their cars into spaces in parking lots?

Why do people do what they do?

Why do I deliberately act like a mischievous child?

Why am I in so much pain?

Why am I in therapy?

Why aren’t other people in therapy?

Why did I take the rest of these pictures?

 

Why is it taking so much longer for me to access and transfer my photos? Why does that happen periodically?  Why does it bother me less each time it happens?

Why am I still having trouble writing that letter from the President for my professional organization’s newsletter?  Why did I start fresh yesterday with a new topic?  Why did Michael say he thought my first, abandoned topic  (the rejuvenation of Spring) was better? Why am I going to finish the second topic and then write another letter with the first topic if I have time? Why am I using the quote “If you want something to get done, give it to the busiest person” in my letter?

Why did I ask all the questions I did in this podcast (starting at 19 minutes and again at 28:34)?

 

Why did Michael not want to listen to that podcast last night? Probably for the same reason he doesn’t usually read this blog.   Why did I think I could find the post that explains that by searching on “Why Michael doesn’t read this blog”?

Why would you leave a comment today?

Why would I thank all those who help me write these posts and also YOU?  Why do you think?

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Categories: health care, heart condition, personal growth, photojournalism, Psychotherapy | Tags: , , , , , , , , , | 18 Comments

Day 2220: Heartbreak to Happiness

Yesterday, I went from heartbreak (about my wonderful, trusted, and long-time cardiologist Dr. Mark Estes leaving Boston) to happiness about the kindness, caring, commitment, and competency of my new cardiologist, Dr. Munther Homoud.

While I was waiting to see Dr. Homoud for the first time, I noticed all this:

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I’ve gone from heartbreak to happiness about my unusual congenital heart disorder many, many times during my almost sixty-six years on this planet.   At this point, after a miraculous and happy time when my heart reverted to a normal rhythm after my valve replacement surgery in 2016, my heart is back in atrial fibrillation for the rest of my life.  I have no heartbreak about that, only happiness because of my caring and committed team of cardiologists.

Do you see any paths from heartbreak to happiness in my other photos from yesterday?

 

 

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My boyfriend Michael (who makes my heart happy  with his nutritious, delicious, low-salt home-cooked meals) helps me go from heartbreak to happiness, every day.  Last night, after a  typical heartbreak-to-happiness-to-heartbreak-to-happiness day, we danced to this:

What helps you go from heartbreak to happiness? For me, gratitude always helps.

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Categories: personal growth | Tags: , , , , , , , , , , | 25 Comments

Day 2059: HEART TO HEART

Where does your HEART go, dear HEART, when you HEAR The words “HEART TO HEART”?

My HEART goes to important conversations with those I love, including these two Scottish women with whom I share a very unusual HEART condition.

Whenever I’m in Edinburgh, I have a HEART TO HEART TO HEART with Vicki and Andrena. We all have congenitally corrected transposition of the great arteries (cctga), the rarest of congenital HEART conditions and we have a lot to say to each other. The odds of the three of us being in the same place at the same time are so astronomical, I don’t have the HEART to calculate it.

Do you see any other HEART TO HEART’s in my other HEARTfelt photos from yesterday?

I look forward to HEART TO HEART’s in the comment section, below.

Thanks — from my HEART — to my HEART sisters Vicki and Andrena, Vicki’s wonderful rescue dog Belle, Loudons Cafe, the Edinburgh Festival Fringe, those who celebrate difference, all who battle suicide, Gillian Skye (the excellent writer and actor of Come Die With Us, which touched my HEART), Tony Slattery, all those who forgive and learn from mistakes, and — of course! — YOU, my dear heart of a reader.

Categories: heart condition, personal growth, photojournalism | Tags: , , , , , , , | 24 Comments

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